CLIMB Study (Clinical Informatics for Mind and Brain Health
IRAS ID: 268811)
The primary objective of this study is to establish patient and public views on the sharing of NHS/HSC identified health data (for clinical purposes) and de-identified health data (for research) across the UK by means of a national survey. Views will be sought on patient and public current understanding of health data sharing, how they would like to see their identifiable health data
shared (or not), with whom they would want their data shared (identifiably for clinical purposes, or in de-identified fashion for research purposes), whether they would be willing to share their mental and physical health data equally, and whether different thresholds should apply to “free text” (narrative) versus structured data. Ideas on designing a single consent form will be sought, so that identifiable health data may be shared across the UK, as well as how sign up to this might be achieved. Finally, views will be sought on data linkage for research, and on a national web portal to sign up to be contacted about health research.
Anyone aged 16 or over can participate using the link below for more details.
Do you know this practice is a research active site?
What does this mean for you?
This could mean that you are invited to take part in research which might happen at the practice or it could be at a local hospital.
If you agree to take part, and the choice is yours, you will be contributing to advances in treatments, interventions and understanding of diseases.
You will also be paid any expenses you experience from being involved.
Quotes from patients in this area who have been involved in research:
“Could help people in the future.”
“I thought my researcher was friendly and made me feel comfortable. I like to think I would be helping other people with depression by taking part"
Why does the practice think this is important?
It shows our commitment to good quality care and how that might be improved.
It enables the practice to have access to opportunities for patients and sometimes training for staff which otherwise we would not have and through this we are offering a better service to patients.
If you are interested in knowing more about the sorts of things we do here get in touch with Anne Brooks.
COPD and Asthma
Monitoring how the practice manages its asthmatic patients to ascertain how severe attacks can be prevented.
Managing pain control
None at present
Observing behaviour on patients newly-diagnosed with Atrial Fibrillation
Management of lower urinary tract symptoms in men